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Bureaucratic red tape delaying approval of uterine cancers as 9/11 illnesses, advocates say

At least 50 women who worked as first responders at Ground Zero and those who were nearby may receive coverage from the World Trade Center Health Program

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A couple stands at the National September 11 Memorial on Sept. 8, 2021. 鈥淭he petition to add uterine cancer to the list of covered conditions was filed in September 2020, which means that it鈥檚 now been more than two years without a decision from the Department of Health and Human Services,鈥 said Rep. Carolyn Maloney. 鈥淚n the 21 years since 9/11, too many people have been diagnosed with uterine cancer as a result of exposure to toxic chemicals, pulverized drywall and powdered cement.鈥

Photo/Angela Weiss/AFP/Getty Images/Tribune News Service

By Thomas Tracy
New York Daily News

NEW YORK 鈥 Federal health officials are dragging their feet on adding cancers of the uterus to a list of 9/11-related health conditions 鈥 outraging survivors fighting to have the illnesses recognized.

鈥淭hey鈥檙e going to delay this as long as they can,鈥 retired Con Edison employee Cheryl Hall told the Daily News. Hall worked at Ground Zero for weeks following the terror attacks and . 鈥淧art of me feels they鈥檙e hoping we die before they have to take care of us.鈥

After countless calls to add uterine cancers to the 9/11 illness list, the federal World Trade Center Health Program in May. The proposal went through a 45-day public review and was expected to be added to the list by the beginning of June.

That was nearly five months ago.

Sources with knowledge of the issue said there were no public or scientific challenges and the proposal will ultimately be approved. No one knows, however, just when this will happen.

Unnecessary bureaucratic red tape is stopping its approval as the proposal slowly shuffles its way from one desk at the federal Department of Health and Human Services offices in Washington, to another before it goes to Secretary Xavier Becerra鈥檚 desk, the sources said.

While women made up a small percentage of 9/11 first responders, many women either lived near the World Trade Center or, like Hall, helped in recovery efforts after the towers fell and breathed the same toxic air.

鈥淭he petition to add uterine cancer to the list of covered conditions was filed in September 2020, which means that it鈥檚 now been more than two years without a decision from the Department of Health and Human Services,鈥 said Rep. Carolyn Maloney. 鈥淚n the 21 years since 9/11, too many people have been diagnosed with uterine cancer as a result of exposure to toxic chemicals, pulverized drywall and powdered cement.鈥

Benjamin Chevat, executive director of the 9/11 Health Watch, agreed and called on Becerra to move on the issue immediately.

鈥淪ecretary Becerra needs to finalize a decision on this now and end the delays,鈥 Chevat said. 鈥滻f the secretary told everybody to get this done, the decision will be made by the end of the week.鈥

If the addition is approved, at least 50 women who worked as responders at Ground Zero and those who lived or worked nearby and now have uterine cancer will receive full coverage from the World Trade Center Health Program for past and future treatments.

Those who have developed uterine cancer will also be able to seek compensation from the September 11th Victim Compensation Fund.

Stephanie Stevens, a spokeswoman for the National Institute for Occupational Safety & Health, which is handling the proposal for the HHC said 鈥渢he review is still in process.鈥

Besides the public review, the proposal also has to undergo an 鈥渋ndependent peer review,鈥 she said.

鈥淚f after review of the public and peer-review comments the World Trade Center Health Program decides to move forward with adding uterine cancer to the list, it is required to publish a Final Rule, which would go into effect 30 days after publication,鈥 Stevens said.

The delays have done nothing but anger Hall.

鈥淚 really believe that had this been a man鈥檚 disease and a man could get uterine cancer, it would have been covered right away,鈥 she said. 鈥淵ou got 90 cancers on this list, why wouldn鈥檛 this be one of them?

鈥淚t鈥檚 unfair,鈥 Hall added. 鈥淚 just wish there were men in power backing up the women who need this help.鈥


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306 active and retired FDNY members 鈥 including firefighters and EMS members 鈥 have died of 9/11-related illnesses

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